Showing posts from April, 2012

The Unknown and more

Just before spring Break I got a call from the pediatric neurologist's office and they had an opening. They were able to see us on the 24th of March! I was so thrilled that we were able to make it. I thought the weakness in Ethan was maybe his feet or calves, but the doctor said that it is in his hips, and pelvis. Which makes sense and is why he has a hard time holding it when he needs to pee and at night he has to wear a pull up. They already had our doctor do a CK test and it came back normal, if it had been elevated he said that he would bet it to be Duchenne muscular dystrophy, but since the CK came back normal he isn't sure. On the 11th of April he had to have a muscle biopsy. I had to wait until the day before to hear what time we needed to be to PCMC. It made me crazy to wait so that I could plan when I would leave. We had to be there at 6:45 AM so I decided to drive down to Utah the night before. I was hoping to leave around 8 PM but I had to pick Spencer up fro…